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Method Article

The Dyspepsia Educational Tool As a Novel Aid in Dyspepsia Management

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DOI:

10.3791/59852

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June 29th, 2019

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In This Article

Summary

This protocol describes the development process of a digital dyspepsia educational tool. Assessment of unmet needs and literature, content development, and building of the tool are presented. The methodology can be used as a guide for future development of digital educational tools.

Abstract

Digital educational tools have a well-established role in current healthcare. In particular, disorders that are managed non-pharmacologically benefit from this development, as it enables patient engagement in self-management. Dyspepsia is a condition thought to arise from gastric and duodenal perturbations, brain-gut axis disturbances, and dietary factors. Behavioral interventions are a major part of dyspepsia treatment, hence patient engagement and motivation through education is essential. Protocols that describe the development process of such educational tools are scarce. We provide a methodology describing development of a dyspepsia educational tool. Assessment of users' needs is the first step, followed by a literature search. The content is developed based on the main themes and entered into a content management system, to build the program. Final adjustments are made after a pilot test of the tool. The presented protocol can be used as a guide for development of a digital dyspepsia educational tool or as a tool for similar situations.

Introduction

Patient education is an important component of healthcare, enabling active engagement of patients in responsible management of their health1. To improve efficacy and appropriate use of healthcare resources, contemporary and disease-specific measures are needed to facilitate patient engagement.

Nowadays, digital tools increasingly replace paper versions of patient education, benefiting from their sustainability, effective distribution, and potential to visualize information. For chronic illnesses that lack curative treatment and biological substrate, education is essential for motivation of patients to engage in self....

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Protocol

All procedures described in this protocol were approved by the Radboud university medical center Institutional Review Board (file no. 2016-3074).

1. Preliminary research

  1. Focus groups to assess unmet needs in dyspepsia management
    1. Create a structure for a focus group with dyspeptic patients and with general practitioners.
    2. Conduct a focus group. Keep conducting additional focus groups until saturation of information is reached.
      NOTE: For this study two focus groups were conducted.
      1. Recruit participants from patient organization platforms and the gastroenterology outpatient clinic.
      2. ....

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Results

Results of focus groups

Five patients, recruited through patient networks (n = 2) or at the outpatient clinic (n = 3), were invited to join a focus group. All focus group patients were diagnosed with dyspepsia based on the opinion of a gastroenterologist. Characteristics of included patients are presented in Table 1.

Most participants .......

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Discussion

The digital dyspepsia educational tool, developed using the abovementioned protocol, is a novel multimedia educational tool to assist patients and physicians in management of dyspepsia. This tool may be deployed to stimulate patient engagement, and improve health outcomes while curtailing inappropriate use of medical resources.

A similar procedure has been described for development of a fibromyalgia app15. As with dyspepsia, management of fibromyalgia focuses initially .......

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Disclosures

The authors have nothing to disclose.

Acknowledgements

Development of the dyspepsia educational tool was funded by a grant received from The Netherlands Organization for Health Research and Development (ZonMw), in the context of the 'to do or not to do' program by the Netherlands Federation of University Medical Centers (NFU). We also would like to thank all the staff from Medify bv. for support, equipment, and expertise. In addition we would like to thank all our participants.

....

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Materials

List of materials used in this article
NameCompanyCatalog NumberComments
Dyspepsia e-learningDyspepsia e-learningDigital educational tool for dyspepsia management
Paper Food DiaryAnySchedule to record food consumption and symptoms
ComputerAnyA computer or tablet should be used to complete the e-learning
Medify Content Management SystemMedify BVA content management system to process the e-learning content

References

  1. Barello, S., et al. eHealth for Patient Engagement: A Systematic Review. Frontiers in Psychology. 6, 2013(2015).
  2. Halpert, A. Irritable Bowel Syndrome: Patient-Provider Interaction and Patient Education. Journal of Clinical Medicine.

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Patient Education DevelopmentFocus Group AssessmentLiterature Search ProtocolContent Management SystemE-Learning Pilot TestingUser Experience EvaluationRandomized Controlled TrialDigital Health InterventionPatient Self-Management