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Enabling Those with Speech, Language, and Communication Needs to have a Voice in Research

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Sam Harding

Sam Harding

North Bristol NHS Trust

Sam Harding is a Doctor of health psychology and holds Masters in both Psychological Research Methods and Medical Education.  She is a Senior Research Associate at North Bristol NHS Trust (NBT) where she leads teams on speech and language therapy research including developmental language disorder, language assessment during awake craniotomies, and neurogenic dysphagia.  Sam also works within the Research and Innovation department of NBT where she facilitates the development of early career researchers, grant writing, and journal article preparation.  Sam leads a Master’s module at King’s College London, on the Maxillofacial Prosthetic Rehabilitation Course.  Other teaching includes: ‘How to write a journal article’, ‘Understanding quantitative analyses’, ‘Undertaking qualitative analysis’ and ‘Carrying out systematic reviews’. Over the last twenty years Sam has conducted and published research with, and on behalf of, NHS, charities, and commercial research organizations.  She calls upon a unique mix of psychology research methods and frameworks to answer diverse research questions. Sam has used her expertise in primary and secondary health care settings and across diverse fields including hyperbaric medicine, chronic respiratory disease, maxillofacial cancer, stroke, and speech and language.  Her overall research interest is the impact of disease and treatment on the biological, psychological, and social aspects of people.  

Collection Overview

The term “speech, language and communication needs” (SLCN) is often used in relation to children and/or young people who have difficulty with certain aspects of communication. Nevertheless, these difficulties can also be present in the adult population and may often be referred to as “aphasia”.  This difficulty may be minor and temporary or more complex and long term. The term “needs” refers both to the needs of the child or person in question as well as what society can do to support them. This collection of projects is focused on gathering insights into methodologies that are both acceptable and can be used with people that have SLCN.  These needs may arise from congenital disorders, be acquired through accidents or disease, or arise from an unknown origin. 

The perspectives of those with SLCN (regarding the equipment and services they receive from healthcare providers in order to inform improvement) historically has been seen as difficult to obtain, with services and researchers citing the fact that people find communication to be challenging.  There is, however, a growing emphasis on the importance of actively engaging patients in evaluating and developing healthcare as well as being represented in research.

Traditional social science methods of gathering data from people include (1) questionnaires, (2) surveys, (3) focus groups, and (4) interviews. Some individuals with SLCN will be able to engage in these methods, but others (for reasons of type, nature or severity of the condition) will not. This engagement with people with SLCN may necessitate new ways of work.

Articles

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

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Cited by 7

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2020

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